Subject:
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S1: I’d like to share our new alpha-mannosidosis resources with you
S2: Are you up-to-date on the latest alpha-mannosidosis information?
S3: Let’s schedule some time to discuss alpha-mannosidosis
S4: Thanks for meeting with me! I have new resources for you
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Chiesi Global Rare Diseases is here to support you and your patients with alpha-mannosidosis
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[Name Format-choose 1: falseTitle First Name Last NametrueTitle Last NametrueFirst Name],
I’d like to share some information and resources with you about alpha-mannosidosis.
Alpha-mannosidosis is an ultra-rare, autosomal genetic lysosomal storage disorder (LSD) that affects patients differently as symptoms progress throughout their life.1 While there is no cure, we have created a new website and resources that highlight the impact of the disease on patients. To learn more, please visit discoveralphamannosidosis.com/hcp. Please encourage patients and their caregivers to visit discoveralphamannosidosis.com.
Alpha-mannosidosis: A guide for parents and caregivers
This guide is designed for parents and caregivers of children living with alpha-mannosidosis. It offers helpful information about symptoms and treatment, and how parents and caregivers can find support.
Download now >
This guide is designed for parents and caregivers of children living with alpha-mannosidosis. It offers helpful information about symptoms and treatment, and how parents and caregivers can find support.
Download now >
Recognize “red flags” to aid early diagnosis in alpha-mannosidosis
This comprehensive guide offers an in-depth look at how alpha-mannosidosis presents and can help you stay up-to-date on diagnostic and treatment recommendations for patients living with the disease.
Download now >
This comprehensive guide offers an in-depth look at how alpha-mannosidosis presents and can help you stay up-to-date on diagnostic and treatment recommendations for patients living with the disease.
Download now >
Explore the cause, symptoms, and diagnosis of this ultra-rare lysosomal storage disorder
This diagnostic resource provides insight into the clinical presentation of alpha-mannosidosis and the tools required to make a diagnosis.
Download now >
This diagnostic resource provides insight into the clinical presentation of alpha-mannosidosis and the tools required to make a diagnosis.
Download now >
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Reference: 1. Beck M, Olsen KJ, Wraith JE, et al. Natural history of alpha mannosidosis a longitudinal study. Orphanet J Rare Dis. 2013;8:88. doi:10.1186/1750-1172-8-88.